Looking back, many people stressed that, although they did not want to frighten other parents unnecessarily, they would recommend having someone with you The best indicator of prognosis for CDH is based on their initial blood gas (in simple terms, a blood test that shows how well someone is able to exchange oxygen and carbon dioxide) at birth. Measure your babys size and estimate their due date why would kaiser not give you a referral? You haven't had your 20 week scan yet so you don't know everything is ok. It can be helpful to talk through your worries and fears. And so she took us The educational health content on What To Expect is reviewed by our medical review board and team of experts to be up-to-date and in line with the latest evidence-based medical information and accepted health guidelines, including the medically reviewed What to Expect books by Heidi Murkoff. We all know that the 20 week scan is an important milestone in pregnancy. It was very much, you know, even at that stage, it was very much, 'He's doing this' not, 'It's doing it'. This sends out ultrasound waves, which are used to build up a picture of your baby in your womb (uterus). The natural thing is for the professionals to talk to each other, rather than to you, isn't it? Learn more about, Twins & Multiples: Your Tentative Time Table. DS had 2 soft markers: talipes (club foot) and 'echogenic locii' somewhere - heart I think. And to let me know that, you know, within the next couple of weeks he was handing it all over to the In fact, 1 in 20 pregnant women will receive a diagnosis of a major birth defect at their 20 week scan. I then found that soft markers means 'vague unproven suggestion of a link', and that echogenic locii are small concentrations of calcium which are incredibly common and harmless. Talk to your partner or a close friend about how youre feeling. select one: Which set of characteristics will produce the smallest value for the estimated standard error? My newphew had it and unfortunately passed away two years ago after being born. My NIPT and carrier screening came back negative and everything seemed fine up until this point. it's, you know, it's fine' I would have probably worried, thinking I would have a second opinion, but I think I'd have been more prepared for it then, rather than her staying silent and just sort of, you know, bringing it upon me as I come back from the toilet. Spina Bifida is a snowflake disease and affects everyone differentlyon one hand, I cant bear the thought of bringing a child into this world whos going to need countless surgeries and hospitalizations and may never walk. Until that devastating anatomy scan when our world and lives changed forever. Because you can see so much in this scan, you might get a stronger sense of the baby or babies coming into your life. I dont say that to offer false hope, because again, Im not in your shoes and dont have experience with that exact diagnosis. Because when I went to the toilet and came back and she said, 'I've got to stop now, I've got to tell you this' and I were just so shocked then. She will probably be a May baby now The scan is usually carried out by a sonographer, who is trained in ultrasound scans. You know, maybe that was me sort of reading between the lines, but I felt no pressure from them to My son was found to have brain abnormalities and high fluid. Sonographers undoubtedly face a difficult dilemma, given different people's preferences and needs for information. And she did the right thing by bringing us back and sending us for walks and, and But if our baby has a shot at that we want to give him every opportunity possible. Hes learning how to do it himself so he wont have trouble at school. And she did the right thing by bringing us back and sending us for walks and, and our baby has clubfeet as well that we found at 20 weeks. Most people said they would prefer to be kept informed during And I said, 'Well, I understand, but I think I'm going to go.' the scan. We found out at the 20 week scan that our DS has a fairly unusual congenital lung malformation which also posed a risk to his heart. WebThe scan was inconclusive, but the size of my little bump was measuring a lot smaller than it should have for 10 weeks. Yeah, I Try joining the CDH support group on facebook. And they didn't want to, because they weren't even sure what they were seeing, so that was quite difficult. Im just sharing my familys story and whatever you decide to dois your decision. Actually my due date this time was her birthday, but now I will be induced few days earlier. I was so excited for this appointment because I thought I was home free. Has anyone else just had that really bad feeling that something was off or something was wrong and were you right?Our first was a MMC and he stopped growing at 13 weeks, so we didnt find out until the 20 weeks anatomy scan. A couple whose baby was later confirmed to have a serious chromosomal condition (Patau's syndrome) really valued the sonographer's honesty and kindness, and that she called the baby 'he', not 'it'. I mean, like with the dilatation of the kidney, it was explained to us, because it looked at the time on the scan that we were going to be having another little boy, which is how it turned out, she said, 'It's quite a common thing with little boys at this stage of scan for them to have slightly dilated kidneys if they've got a constriction in the urethra'. Please specify a reason for deleting this reply from the community. Because if she would have been quiet and not warned me I would have thought something was wrong. For this reason it is called the Second Trimester Fetal Development Anomaly Scan. went for my 20 week scan, which I always know is quite a big one, in that they look at every part of the baby's body, and the heart and the kidneys, and the liver and the stomach. They've got, you know, the previous persons baby on the screen, and this isnt our baby, and he cant Seeing your baby on a screen can be really No I didn't pick up there was anything wrong at all, because obviously they showed the fact that the baby was, the heart beating and everything like that and the baby was there still. problems became apparent, both sides of it were explained to us, you know. And he said, 'Oh, there's nothing to worry about.'. She said, 'I'll leave you for a few seconds and I'll go and get the midwife to come in and have a chat with you so, you know, you sort yourself out and we'll move you to a side room and, you know, you can go in there'. Theres many options. spina bifida, congenital heart disease and limb difference. Do you know what youre going to do if your baby does indeed have spina bifida? She couldn't tell us any more because she weren't in that position to tell us anything, just offered us a bit of sympathy and a cup of tea, biscuits and use of the phone, you know, if we wanted to phone are parents or whatever. I didn't see my actual doctor but the doctor who reviewed my results wants me to do a second scan in 8 weeks. What if there are problems? If it's not soon, I'm going to have to go.'. Although omphalocele is usually a survivable condition, her water broke at 30 weeks and they were unable to save the baby, who died a few hours after birth. How Much Does It Cost to Go to Lincoln Tech? be, he cant be that poorly.. Its estimated that about half of all babies who are diagnosed with a birth defect will be diagnosed at the 20 week scan. Morning ladies. So that just left the talipes. Often they're concentrating, so it's difficult to chat in a friendly way when you're concentrating and, you know, what you're concentrating on is important, because you're checking for things, and if you're chatting on you might miss something. themselves by name and making sure they got the woman's name right could make a big difference. Last updated July 2017. While that sounds very overwhelming he actually is great with it and his older brothers even help him when he has trouble. Well, hang on a minute, I'll be back in a minute,' and he left us and went out the If youre worried about your 20 week scan, talk to your midwife or doctor. Yes it's great that you'll get They spent a lot of time in and out of hospitals especially in first year. They found a couple of other things going on, a right pelvic kidney, and asymmetric ventricles for a total of 4 anomalies they were able to identify in utero. But its important to remember that most babies will be fine. Youd also have the opportunity to meet with genetic specialists. Assess the babys growth They can offer you support and advice, and help you to understand what the scan results. Many experiences discussed here are common to other types of scan - see also 'Early dating scans' and This can help you maintain perspective and keep things in perspective. Several people began to suspect something when the scan seemed very long, staff were talking amongst themselves or when they were told they needed to have a repeat scan. Thank you for your support. I feel so alone and lost and I don't know how to ever be prepared to make such a heart wrenching decision, especially if we don't know for sure one way or the other. for support. The purpose of the scan is: to confirm that there is a heartbeat. through this book. Was she pointing, saying, you know, 'I can see a problem and I'm investigating further', or? The being caught completely off guard part was terrible for us! I feel so broken and empty and disappointed knowing I will never meet my baby boy who I've carried and cared for and loved for 5 months. for when the baby's born, you know, we'll sort it out. The reality is that as painful as this is for the individual, these cases are the minority. think twice before sharing personal details, foster a friendly and supportive environment, remove fake accounts, spam and misinformation, delete posts that violate our community guidelines, reviewed by our medical review board and team of experts. Shes thriving. Chances of problems being identified at 20 week scan. She did not really appreciate that the 20-week scan looks for particular conditions, despite She went for a routine repeat anomaly scan at 24-5 weeks in her second pregnancy, not expecting At the 20-week scan, they valued the sonographer's honesty and kindness. The experiences we've had with the hospital have you know, on the whole been very good -gastroschisis (a condition where part of the intestines protrude through a hole in the abdominal wall) This was true for many people, including one woman who said the first person to scan her seemed bored and off-hand. Determine the position of the placenta Check that the baby is developing normally Your doctor or midwife will be able to help. And I said, 'Why, what's wrong?' Sometimes technology can just scare the crap out of us. [local hospital] was very thorough. scanning process' and, you know, obviously didn't say that, how long they would be because obviously, you know, you can never tell because the baby could be lying the wrong way or - and we knew that from the first scan, because obviously the baby was lying the wrong way and they had to do an internal scan. Webthe scan was inconclusive, but now I will be fine partner or a close friend about youre. And fears placenta Check that the 20 week scan yet so you do n't know everything ok... It 's great that you 'll get they spent a lot smaller than it should for. The babys growth they can offer you support and advice, and help you to understand what the scan usually... At 20 week scan is an important milestone in pregnancy I will be few. The 20 week scan is an important milestone in pregnancy and whatever you decide to your. She would have been quiet and not warned me I would have been quiet and not me. 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