College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . Foundation offers memorial scholarships for students who are burn survivors, have been treated for burn/soft tissue injuries, or suffer from frost-bite, pursuing higher education. Awardees will be notified in October. Childhood Cancer, Parent, Family Member, Loved One With Cancer. The National Organization of Rare Diseases catalogs more than 7,000 rare diseases, most of which are genetic in origin. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. Program offers awards to students with a parent diagnosed with ALS, continuing their education. Scholarships for students with learning differences. Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. webmaster. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Program provides scholarships and educational counseling to children of military personnel who have lost a parent in the line of duty. Program provides competitive internships to students with apparent and non-apparent disabilities studying science, engineering, mathematics, computer science and some fields of business. A college scholarship awarded to students who are considered legally blind. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Program offers educational funding for cancer patients and cancer survivors to continue their education. Program provides scholarships to high school seniors diagnosed with hemophilia A or B. Veterans - Disability/Injured-Families, Victims of 9/11 and/or family member. Scholarship program supports LGBTQA+ and allies who have demonstrated a commitment to advancing the mission of the LEA and the LGBT movement. Program provides fellowships for deaf or hard of hearing students that have been accepted in an accredited graduate program in a college or university. Provides a scholarship to a high school, undergraduate or graduate student who has cerebral palsy. Program provides a scholarship award to a student diagnosed with down syndrome seeking higher education or post-secondary classes. A scholarship for a college/university student with a disability to receive assistive technology software or hardware up to $500. Program offers financial support to students whose lives have been affected by rheumatoid disease. Offers scholarships between to cancer survivors between the ages of 17-39. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. An educational scholarship for disabled service members and honorably discharged Gulf War veterans, or a spouse of a deceased service member and honorably discharged Gulf War veterans. Pensacola, FL 32502 Program awards one-time and recurring scholarships to students who are affected by cancer and are in pursuit of a post secondary education. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. Provides a one-time scholarship for cancer patients/survivors attending college. Awardees will be notified in October. Bereavement, Military related, Disabled - Veteran. $3000 scholarships to students of color with autism pursuing a post-secondary, undergraduate education or vocational-technical training at a 2- or 4-year college; trade, technical or vocational school; or a cooperative life skills program. Provides a scholarship to a student affected by cancer. Program awards a scholarship to a college student who has been affected by Mesothelioma or any other cancer, either by their own diagnosis or that of a family member or friend. by She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). HONcode standard for trustworthy health information: Program provides college scholarships to individuals diagnosed spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, or ostomy (ileostomy, colostomy, or urostomy). Program offers scholarship to survivors of childhood cancer who are seeking higher education. Program awards multiple scholarships to siblings of cancer patients pursuing higher education. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Program provides scholarships to one female and one male student athlete who are legally blind pursuing a higher education. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Program provides scholarship to an individual living with vision loss or blindness attending graduate school. Research & Scholarship. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Provides a scholarship created to provide youth on home parenteral and/or enteral nutrition (HPEN) the chance to experience summer camp. Program awards scholarships to children and young adults living with sickle cell/and or thalassemia. "The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience," said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Suite 700 Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. Chronic, Serious or Life Threatening Illnesses. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Disability - Mobility, Mobility Disability, Disability Requiring Assistive Technology, Special Needs, Wheelchair Bound, Paralysis, Paralysis due to Spinal Cord and/or Brain Injury, Paraplegia. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. Program provides financial assistance to individuals with hemophilia for GED certification. Scholarships awarded to two students with cystic fibrosis who are pursuing a career in the fine arts, graphics, music, singing, photography, filmmaking, writing, poetry, dance, theater, and other performance arts. Notify Me Interested in learning about additional scholarship opportunities? Communication Disorders, Speech Impairment. Program offers a scholarship to a student diagnosed with cancer. CHASA awards athletic scholarships to young athletes who have had hemiplegia since childhood to cover expenses for specific athletic competitions. Programs are listed in alphabetical order by program name. $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. Program provides two $500 scholarship to college and university students with a mobility disability. This award is for college-bound students (aged 17-25) with kidney disease whose academic career would benefit from financial assistance. El programa ofrece una beca para pacientes de 25 aos o ms con enfermedad renal o urolgica. $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Mental Disability, Behavioral Disorders, Eating Disorders. Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. June 15, . A campership for campers who are unable to pay the total cost of a camp experience. Veterans - Disability/Injured-Families, Military related. Rare Disease Day 2020. Research & Scholarship Overview; Patient Care Research. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. An educational scholarship for students attending a California college/university with a learning disability. Contents may not be reproduced in any form except for personal use and may not be used on any other website without permission. Program awards scholarships for the legally blind attending a technical college. This scholarship program is through Sanofi. Special Needs, Disabilities - All, Childhood Disability. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Provides a scholarship to individuals that have been hurt in a car accident (in the Chicago area), or other types of personal injury situations and are struggling to keep up with medical bills and their day to day lives. Program provides a one-time scholarship of up to $5000 to individuals living with epilepsy, their family members and caregivers. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. | No Greater Sacrifice (NGS) is dedicated to the children of our nation's fallen and wounded Service members (post 9/11/01) by delivering scholarships and resources to improve their quality of life through the pursuit of higher education. You are now leaving the #RAREis Community website. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. A critical/life Threatening disease/illness and are pursuing their higher education one with cancer accepted. Are legally blind multiple scholarships to high school with down syndrome seeking higher education attending! 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